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Latest press release from Simon Harris TD, issued on Wednesday, May 12th 2019…
Wicklow TD, Minister Simon Harris has welcomed the decision of the HSE to approve access for the drug Nusinersen (Spinraza) for children with Spinal Muscular Atrophy (SMA) Type I, II or III on an exceptional and individualised basis.
Minister for Health Simon Harris has confirmed the decision was made by the HSE leadership team this morning.
Speaking on this decision, Minister Harris said, “This is such welcome news. Families have fought a long journey to get here but I am so pleased children will now have access to this drug.
“I am pleased to confirmed to me there will be no delay in accessing the drug. I want to commend the families for their campaign and the HSE for approving access.”