It’s been a hard-fought battle for Wicklow parents Les and Lynda Martin over the past four years…
Back in December 2016, their young son, Cathal, was diagnosed with MLD (Metachromatic leukodystrophy), a rare hereditary disease which causes the destruction of the fatty layer surrounding the nerves.
Two months later, their younger son, Ciaran, was also diagnosed with MLD.
Championing the introduction of better screening of newborn babies in Ireland, the Martins were determined to save other families from their experience. And in the process, Cogs and Kiwi touched the nation, from lonesome boatmen on Bear Island to the little fella in the Áras an Uachtaráin.
So, it is with heavy heart that the Martin family released this statement today…
Poor Cogs passed away last night.
Such a beautiful little soul he left in his sleep with a smile.
He changed our lives and did something special with his. we will love him forever.
We will lay him to rest in privacy with his family and would appreciate some space at this time.
Thanks so much for being so good to us thru all his life.
Our thoughts and prayers are with Les and Lynda, and their two other kids, Ciaran and Holly, at this difficult time.
To provide the best experiences, we use technologies like cookies to store and/or access device information. Consenting to these technologies will allow us to process data such as browsing behaviour or unique IDs on this site. Not consenting or withdrawing consent, may adversely affect certain features and functions.
Functional Always active
The technical storage or access is strictly necessary for the legitimate purpose of enabling the use of a specific service explicitly requested by the subscriber or user, or for the sole purpose of carrying out the transmission of a communication over an electronic communications network.
The technical storage or access is necessary for the legitimate purpose of storing preferences that are not requested by the subscriber or user.
The technical storage or access that is used exclusively for statistical purposes.The technical storage or access that is used exclusively for anonymous statistical purposes. Without a subpoena, voluntary compliance on the part of your Internet Service Provider, or additional records from a third party, information stored or retrieved for this purpose alone cannot usually be used to identify you.
The technical storage or access is required to create user profiles to send advertising, or to track the user on a website or across several websites for similar marketing purposes.